Revamp and new commitments

My silence on this blog was not for a lack of opinion or expression.  Anyone close to me knows I am in no shortage of either.  Since the last post, our lives were consumed by daily living, major events, major fails, and the quest for help for the ghost child.  In this time, our path hasn't changed much.  We have more faith in our direction, growth in understanding, and a few battle scars.  Often I find myself being asked or offering advice on my wellness, our family wellness, and our ghost child's wellness.  With this in mind, it's time to revamp this blog.  Our life is incredibly atypical and has always been.  At times we feel isolated by our uniqueness but we are anything but alone.  This will become our documented advice, suggestions, life face plants in the mud, and "Hell Yes We Did It."

The first step on the revamp is catching up with the ghost child.  She is still a ghost in the school system.  The way the battles been, I feel like a crazed medium screaming "it's a ghost" than a concerned parent.  As it turns out a month ago, a justified parent. Take that bitches.  After months of testing and dragging two preschoolers in hours of waiting rooms, we have a diagnosis and a treatment plan.  Ghost child has mild mixed expressive/receptive disorder and specifically a language processing disorder.  A mild diagnosis is anything but mild when it's out of control and the root of anxiety.  We had to do something and we did. Hell Yes We Did It.  With the hauling of three kids around our city, I have been in a constant battle with the ghost child's school and school system.  Word of fluff and civility were exchanged like those of a Jane Austin novel with the clear results of a toddler scribble.  It was like dealing with defiant toddlers than educated adults who are educated on education.  Even with the diagnosis and clear, simple accommodations needed, it has been an uphill battle.  After spending most of Monday dealing with the school system on two separate issues concerning ghost child, we managed to make a major life switch.  We are pulling her out.  I am tired of the battles.  All of my energy is spent in negative directions and not much to show for it.  Sure my ghost child is going "great" in school.  She isn't a discipline problem in the least; she even wins every other day a cute icon in an class communication app that has not a DAMN meaning.  What I get when she gets home is an overly exhausted, moody.  She says she is struggling in the back of the classroom (exact opposite of where she should be) and is struggling to keep up.  To hell with the cute icons and the letter "O" written in her agenda. Sorry "o" it isn't personal, it's what they use.  Ten days from two days ago, she will be a home schooler. We already are quirky so we fit right in with the stereotype.  By the way, there are lots of meaningful social opportunities other than school. We aren't recluses. Do not expect a socially awkward kids anymore than she is now.  It is a path of least resistance in the battle of her education placement.   I would rather put our efforts into education and her learning to manage this disorder and more time into therapy. It's time consuming on its own.

My lesson to the reader is to go with your gut and the fight is worth it in what ever path you choose.  Our state government and department of education has already started hearing from me.  This will continue to do so.  The fight for a child with a disability/disorder/etc rights is worth it.  I am going with my instinct on this and pulling her home and separating our fight from the physical education environment.   We are moving from just trying to survive to thrive. My sincere hope is some of you benefit and it encourages thrival as more posts come about our journey.